Paroxysmal Nocturnal Hemoglobinuria NFZ — 22 facilities in 21 cities

Paroxysmal nocturnal hemoglobinuria (PNH) is a rare disease where the complement system destroys red blood cells. Symptoms include dark urine especially in the morning, anemia, thrombosis, and fatigue. The NFZ covers flow cytometry diagnostics, and treatment with eculizumab and ravulizumab through drug programs. Patients require ongoing hematological care and monitoring.